Thursday, September 6, 2012
In May, I finally fell through the doors of an LLMD, one I had chosen, one I knew would help me. And he has been. I am more functional every day. I am immensely grateful. Right now, I am also immensely angry. I learned from a friend and fellow patient of his today that the records of all his Lyme patients have been subpoenaed. I am frightened for him. He gives so much, from his small office. I am worried for his staff. I am, of course, worried and frightened for myself. And I feel violated. *My* records are in there. *Mine.* My friend's, too. Maybe yours. I wish I knew how to help him. I wish this disease and the bizarre agenda that comes with it did not render us all, patients and caregivers, at some level, powerless. No pithy ending here, just anger and frustration. This is wrong.