Thursday, February 25, 2010

Big Brother is Watching Over Us

“Unless we put medical freedom into the Constitution, the time will come when medicine will organize into an undercover dictatorship to restrict the art of healing to one class of Men and deny equal privileges to others; the Constitution of the Republic should make a Special privilege for medical freedoms as well as religious freedom.” 

— Benjamin Rush, M.D. (circa 1787)

Benjamin Rush (1745-1813) was a colonial physician known as the “Father of American Medicine.” He signed the Declaration of Independence, served as the Surgeon General of the Continental Army, and opened the first free medical clinic at the Pennsylvania Hospital. (1)

Do you think old Ben Rush is sitting somewhere looking down on us with George Washington and Thomas Jefferson saying, “I told you so.”?

Medical care in our country is not a right nor a privilege. It is big business for profit. Insurance companies, pharmaceutical companies, doctors, researchers and even universities are all looking for their piece of the pie no matter the cost.

Those who stand in the way of this multi-billion dollar industry run the risk of being persecuted.

Like Dr. Charles Ray Jones, the physician in Connecticut who is accused of what? Making kids well? Don’t they normally award people for saving lives? Apparently if in doing it big business feels threatened it is not OK, better those kids suffer and die. Right and wrong don’t matter as much lining pockets.

Bills are currently being passed that will make it easier for doctors to treat Lyme disease with long-term antibiotics. Some states, like California and New Jersey already have protections in place that allow doctors to use long-term antibiotics without fear of losing their medical license (4). This is a big step in the right direction for effective Lyme treatment. For some of us long-term antibiotics are the only way we are going to get better. Standing in the way of their prescription should be considered cruel and unusual punishment. The drug companies should be happy, those antibiotics are EXPENSIVE! It must be the insurance companies that are fearing this move.

Others of us, even with these changes, are still being left out to dry. We aren’t using antibiotics at all. For some of us this is a personal choice, others of us failed on antibiotics. Sometimes man’s wonder drugs cause more harm than good. Many of us are left with alternative or natural treatments as our only option. This is definitely not profitable for the drug companies and an excuse for the insurance companies to ignore us.

Quinine has been used to treat malaria since the 1600’s. It remained the antimalarial drug of choice until the 1940s, when other drugs took over. Since then, many effective antimalarials have been introduced (3). Mepron the foul yellow synthetic poison is a much more profitable and therefore accepted treatment option. It might be covered at least partially by your insurance. At up to $1300.00 for a three week supply, you would hope they would help! Mine did, they paid $1.50 per bottle. Thank you big pharmaceutical business for making me poor. Both mepron and quinine are commonly used for the treatment of babesia in Lyme patients. Quinine Bark retails at around $14.00 for 100 capsules.

Damn hippies and their natural medicines. Our new fangled antibiotics are far more effective to anything in nature. Why, Man made them himself with his superior intelligence! He stole the idea from nature and patented it, the big cost of research and development should not be wasted on a medicine anyone can sell. After all, it is Man’s God given right to profit from Mother Nature’s gifts, brilliant!

I do believe that many of the advancements in modern medicine are, without a doubt, useful, necessary and in many cases superior to the primitive medicine of past centuries. That doesn’t mean that it is all better. Or even all good for that matter.

Some religions believe that God has provided all we need in Nature. Others believe that the hand of God has guided man to create these medical advancements, antibiotics and procedures. Neither is wrong.

I have a hard time though imagining any God giving high 5’s to the corporate insurance bigwigs as they turn their backs on those in need. When they get their big bonus as the result of weaseling out of covering the treatments people need to get well, I don’t imagine God joining them on their private jet as they whisk off to their 2nd home in the Hamptons.

Would any God approve of harassing doctors and charging them with crimes for saving children’s lives? No, that man is not God, he just thinks he is. In the case of Dr Jones these false idols assume the form of the Connecticut Medical Examining Board (CMEB) and the Connecticut Department of Health (CT. DPH). They have imposed a $10,000 fine and a four-year license probation during which time his practice will be monitored. Luckily they have not yet succeeded in forcing him to surrender his medical license.

Aside form the charges they have placed against Dr Jones, the CMEB, are also attempting to introduce a restrictive ‘four part standard of care for Lyme disease’. Jones warns us that this would set a very dangerous precedent that could be used against other doctors and shut down the treatment of chronic Lyme disease. (2)

Benjamin Rush was right. Medicine has officially organized into an undercover dictatorship that restricts the art of healing to one class of men and denies equal privileges to others.


1. Benjamin Rush
2. Letter from Dr. Jones
3. The History of Quinine
4. List of state protections regarding Lyme
5. More on Mepron

Dr Jones’ legal battle is far from over. He continues to fight not only for his patients but for the rights of all Lyme patients. If you would like to make a donation to help Dr Jones you can do so by following this link t0 THE DR. CHARLES RAY JONES DEFENSE FUND

Monday, February 22, 2010

Chinese Herb Lyme Disease Protocol from Natural News

Here is a description of a powerful herbal protocol for Lyme, posted to Natural News today. I'm taking many of these Chinese herbs in my own natural protocol.

Friday, February 19, 2010

A New Day

It's a new day, day 101. The sun is out and the snow is fresh and beautiful. I've finished my last infusion. My nurse will be here shortly to remove my picc line. It feels a bit like being in a life boat and losing your paddles. I'm not worried about having my line pulled. It's painless. It's just that in the past, I've slipped on oral antibiotics before. That leaves one a bit nervous. This was my third picc line. Hopefully, it will be my last.

How do you know when it has been long enough? The double vision has subsided, my liver enzymes need a break and I've been away from my family for a long time. It's enough.

So tomorrow, I am heading home to begin the next phase of this journey. For those of you who know my girls, please keep it a surprise. They will be so excited! I'm looking forward to trying the "toaster" my husband ordered. Yes, I know, it looks like a gimmick from the fifties, but I was intrigued by Ashley's January post about FAR Infrared Saunas and am hopeful my our new sauna will provide an added edge toward healing. My husband has already fallen in love with it. I can't wait to return to the pool at physical therapy and now that I'm thinking of water, three cheers for showers where you can get both arms wet! Heavenly! Home. I can hardly wait! It's going to be a good day!

Thursday, February 18, 2010

This Disease Called Lyme

When I tell someone about my illness, I call it Lyme disease. However, borrelia burgdorferi is only one small part of that illness. My definition of Lyme disease, is something much bigger. Lyme, in itself, was the catalyst that opened the door and invited the rest of my disease to come out to play.

For me Lyme is the large branching tree of everything I have. Each separate infection/disease is only one branch; borrelia burgdorferi, bartonella, erhlichia, babesia, HHV6, CMV, EBV, parasites, amoebas, thyroid imbalance, hormonal imbalance, candida, heavy metals, food sensitivities, the list goes on. I don’t differentiate, I call it all Lyme. The reality is though, it is not all Lyme. Lyme is really only borrelia burgdorferi.

I often wonder how much confusion this causes. I have seen many people write online about how angry they are that their doctor has told them they are now suffering from X not Lyme. They are angry because they are still sick. Of course they are still sick. They most likely had more than just Lyme, borrelia burgdorferi, to start with.

When the laundry list of diseases is as long as most of ours are, getting rid of one infection, even if it is borrelia burgdorferi, is not going to make us well. It is only one step in this long process.

Even the IDSA says that one of the reasons that some of us remain symptomatic is, They had Lyme disease and another infection simultaneously and were only treated for Lyme disease. Each co-infection is, in fact, a different infection.

Putting aside all the monitory interests involved with the IDSA and Lyme disease, are they in part arguing semantics? Or, are we for that matter?

While I believe the IDSA guidelines to be flawed and most definitely not in the interest of the ill, I have to admit that Lyme would not be nearly as hard to treat if it was only borrelia burgdorferi.

I suppose I would even go so far as to say that if you saw the right doctor, and if you were diagnosed right away, and if you only had borrelia burgdorferi, then Lyme would be easy to diagnose and easy to treat with a short course of antibiotics. That is a few to many ifs for me. It may be the exception but it is most definitely not the rule.

I don’t believe that the literal Lyme disease, borrelia burgdorferi, is the same disease that the majority of us are talking about when we say Lyme. We have it yes, but it is only the trunk not the whole tree of our illness.

If you had noticed the small sapling growing, unwantedly, in your garden early on, you may have be able to simply pluck it out by hand. Now though, with the size of the tree and the span of it’s branches, you are very likely going to need a tree trimmer and a bulldozer to get to the root of the problem.


Wednesday, February 17, 2010

GIVEAWAY: Tender Loving Care for Lymies

My crafty sister, proprietor of the soap-making business lavande de bois, has been with me through thick and thin. She was the first of family and friends to read Cure Unknown to understand what was happening to me. And, no stranger to chronic mystery illness herself, eight months after my diagnosis, she also tested positive for Lyme and has started her own journey back to health.

Inspired by the Lyme Disease walk I did with the other SpiroChicks last fall, she decided to make a soap especially for Lymies--people sensitive to fragrance and chemicals--and donate $1 of the sale of every soap to the Turn the Corner Foundation.

And, one day when my brain was actually working, I came up with the name for her: TLC Bar. Handmade with the healing properties of lavender and calendula, it's tender loving care for your skin and spirit.* I hope you check it out and feel good that by purchasing the soap you're making a donation to our cause. Click here to purchase online.

AND, we're hosting a TLC bar giveaway. Winner will be selected at random. Enter by submitting a comment, linking to our blog (and tell us in the comments section), or subscribing via email. Contest ends one week from today: 2/24/10 at midnight.

*Ingredients: calendula infused olive oil, distilled water, organic palm oil, coconut oil, sodium hydroxide, castor oil, lavender essential oil, ground calendula, and rosemary oil extract.

Wednesday, February 3, 2010

Dr. Olivia

In our family, fighting Lyme disease is a family affair. Our daughters, 7 and 12, were born with the disease. Last year, at various times, we all endured picc lines. My neurological symptoms flared last spring while our youngest was still receiving IV therapy. Upon hearing Mom needed a new picc line, she asked if she could watch, curious because her own line had been placed under anesthesia. Having endured countless medical procedures since birth, I knew she would be fine. The team agreed and after washing up and a sincere promise not to touch anything sterile, my daughter peaked over her mask, from the opposite side of my bed, fascinated by what she saw. When we returned home, she scurried to make a new sign for our room.

I knew I was in very good hands. : )