Christmas of 2007/08 was horrible.
My Infectious Disease Specialist ceremoniously dumped me as her patient and my symptoms were coming to a head.
I was breaking out in hives almost every day.
And I was resigned to the fact that I may never know what was going on with my body. I figured either I had contracted some horrible illness and/or my body mistakenly thought it was under attack so it was attacking my body (autoimmune). Either way I was fucked.
I went to a HMO hospital in Seattle and saw their rheumatoid specialist for testing.
We tested for Lupus, MS, rheumatoid arthritis, and a couple of other autoimmune diseases.
And although my blood work showed super high inflammation rates, I tested negative for everything. At this point she diagnosed me with fibromyalgia and recommended I start taking an antidepressant.
I burst into tears at the doctors office. Another non-diagnosis. Another doctor telling me that an antidepressant was the 'cure-all' for my problems.
I left disgusted and vowed never to step foot in that particular hospital/clinic again.
By this time, I felt like the world's oldest guinea pig. I'd had two thyroid surgeries in 6 months, because my thyroid had stopped working and started growing nodules at a rapid rate. I had no energy. I was breaking out in painful hives at least 3 times a week. I was on heavy doses of antihistamines. My joints and muscles were in terrible pain. My bouts of insomnia were the worst they'd ever been, and if I wasn't depressed at the beginning of this ordeal...I certainly was headed in that direction.
No one was interested in finding out why I was so sick.
My only support was my dear dear husband.
Who held my head and hand while I was on the toilet. Wiped the sweat from my forehead. Let me sleep 18 out of 24 hours a day...when I needed it. And who had started cooking and cleaning because I couldn't even get out of bed.
Then one day in February 2008, my ND who monitors my thyroid levels suggested we test for Lyme Disease. I was skeptical, I had a friend in California w/Lyme and I just didn't think that was my problem. She convinced me we had nothing to lose...and with angels looking out for me, she just happened to know that we should do the blood work through a lab in California (Igenex).
Not giving it much thought, we went about our daily routine and struggles.
And 3 weeks later she called. She asked me to sit down, which is never a good sign, and told me I'd tested positive for Lyme Disease. CDC positive no less.
You could have knocked me over with a feather....
...to be continued