I was newly labeled...a Lyme Disease victim.
There is always a certain sense of relief that happens when your doctor finally gives you an answer.
Of course, I was still skeptical.
Only a few months before I'd been labeled with fibromyalgia and a few months before that labeled with autoimmune urticaria (hives).
My Guardian Angel (my father) must have been working hard that day.
My ND just happened to have gone to medical school with someone who was an up and coming LLMD and had been treating Lyme patients with her partner (an MD) for the last couple of years.
My ND made a personal call to her, and viola, I had an appointment with my LLMD in two weeks.
It really wasn't until I also tested positive for Bartonella and Babesia duncan i, that I finally let my diagnosis settle in my bones.
For those two weeks, I did nothing but research Lyme on the internet, sleep restlessly, and freak out about my new diagnosis. Even though I have a close friend who also suffers from Lyme Disease, and had seen her struggle with treatment for the last 5 years, it was still difficult to wrap my head around my looming future.
I knew enough about Lyme to know my treatment was going to be a long up-hill battle that could potentially go on indefinitely. I knew the future wasn't all lollipops and rainbows.
My first appointment with my LLMD proved to be exhausting and financially draining (haha). I got referrals to a pain specialist, an optometrist, and a psychiatrist.
My pain level was at a constant 6.5, my eyes were giving me so much trouble I had to close and rest them at least 15 minutes every hour or two, and my brain fog and memory troubles were effecting my ability to finish my classes and read more than a sentence or two at a time.
I already was in pure hell...or so I thought.
My LLMD first order of business was to put me on 3 months of Levaquin for the Bartonella. Yippee!
It's been 18 months since my diagnosis.
I've had severe highs and lows.
Good days and days I don't move from my bed.
Allergic reactions that have put me to the edge of my sanity.
...and still I am fighting.
And for all those other Lyme sufferers out there...
"But you look so good."
It's no wonder we suffer from Lyme rage.
peace and health,