Monday, March 30, 2009

It just gets scarier

"Two weeks ago, I was so ill with Lyme, that I thought I was going to die. I was getting neurological symptoms, my right leg was caving in, and my mind would not work. I called the following hospitals; Stanford Hospital, Mayo Clinic, University of California-San Francisco, not a one of these top institutions would take me as a Lyme patient. I start to get an inkling what is must have been like at the beginning of the AIDS epidemic."

--Michealene Cristini Risley, in today's article from The Huffington Post.


Karen aka btrflynana said...

It is really sad that our major hospitals are so ignorant...Something has to many will perish or be left disabled because they were treated incorrectly? I have gone in to ER prior to being dx with Lyme because my symptoms were so severe they thought I was having a stroke!! These bugs in our bodies are terrible! Hang in there and keep fighting the fight...We are going to be the victors in the end!!

monkey girl said...

I completely agree with that statement. I can only hope years from now, we'll be seen as the lyme patients who led the way...and hopefully survived.

We will survive this.

Carol E. said...

My great-grandfather died of strep 2 weeks before the introduction of penicillin. My brother died of AIDS 1 month before anti-retrovirals became available. My mother died of Progressive Supra-Nuclear Palsy (PSP; Dudley Moore died of it). I am now wondering if PSP is just another stage/symptom of Lyme.

And I'm hoping I beat the family trend and manage to recover from Lyme before I'm killed by it -- yet another under-researched, under-funded, under-treated disease.

Glad to find your blog.

Carol E.

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